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5 Famous People With Marfan Syndrome You Didn’t Know About

Filed in Articles by on November 25, 2020

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5 Famous People With Marfan Syndrome You Didn’t Know About.

People with Marfan syndrome: Marfan syndrome (MFS) is a genetic disorder that affects the connective tissue. Those with the condition tend to be tall and thin, with long arms, legs, fingers, and toes. 

They also have overly-flexible joints and scoliosis. The most serious complications involve the heart and aorta, with an increased risk of mitral valve prolapse and aortic aneurysm.  There is no known cure for MFS.

famous people with marfan syndrome

Many of those with the disorder have a normal life expectancy with proper treatment so don’t expect to find them in hospitals. About 1 in 5,000 to 1 in 10,000 people have MFS, including the most famous you have heard of or seen.

Osama Bin Laden

famous people with marfan syndrome

This person needs no introduction since he was famous for a lot of reasons. Born in a family of 16 children, he was 6 feet 6 inches tall. His long and bony face with long fingers and arms do point towards to the fact that he had this disorder.

He weighed only 160 pounds and had difficulty in walking which means he had some spinal problem which is again a symptom of Marfan syndrome. His disease could not be diagnosed, obviously because he stayed in hills and jungles as a fugitive.

He is one of the most famous Marfan syndrome sufferers. Well this list gives us an example of such people who have learnt to live with their disabilities and yet excelled in life.

Bradford Cox

famous people with marfan syndrome

Bradford was a member of the rock band Deerhunter, a singer, songwriter, guitarist and an actor by profession Bradford Cox is a man of many talents. Around the age of 10-12 he first started noticing the symptoms of his condition.

As a result of Marfans and the resulting awkwardness he experienced, he made very few friends and music was his sole refuge.

In the face of all odds, not only did he become a famous musician, he also earned his first big screen role in the widely acclaimed movie “Dallas Buyers’ Club”.

The way we look at things in life also makes a big difference since human life is full of complexities, be it physical or mental.

John Traverner

famous people with marfan syndrome

A very famous British classical composer had Marfan syndrome and was diagnosed after  he had spent 46 years of his life struggling with it. The disorder was rooted in his family, as many members of his family were suffering from this disorder.

His brother and his two daughters were also among them. Traverner has publicly spoken about his disorder and how it affects him. He needed an aortic root development in 1991.

One impressive thing about him was that he had a very positive spirit towards life and he believed in public awareness of the disorder.

Niccolo Paganini

No one would disagree to the fact that Paganini was a musical genius but his condition (Marfan Syndrome) endowed him with certain physical gifts that made him one of the most distinguished violinists of all times. His long slender fingers granted him a mind-boggling reach of 3 octaves on the violin!

Jonathan Larson

Jonathan was a playwright who died in the year 1996 because of aortic dissection. His disorder was diagnosed at a very later stage, making him a classic case of undetected Marfan syndrome.

He received three Tony awards and one Pulitzer Prize for his rock opera. Larson was also a famous music composer but he became famous only after his death.

During Princess Diana’s funeral his cello piece ‘Song for Athene’ was played. He kept complaining of regular chest pains but nobody could suspect that he had Marfan syndrome.

These famous people with marfan syndrome mentioned above never gave up on life despite the challenges they faced, some saw it as a gift and used it like Paganini.

Thus let’s keep our positive attitude up as we deal with the adversities in life instead of getting discouraged.

If you learnt something new from this article, share it with friends and leave a comment below.

CSN Team.

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